I'm so sorry it's been so long the past few months have been so crazy, but not with what your thinking, Nope! Not the Desmoids or the F.A.P, Nope!.... The lump in my face turned out to be a Tumour, I know exciting stuff right! My body is just chucking it all at me at once. So I have had the ultra sound and a MRI then a biopsy (that hurt like hell!! ain't gonna lie) and thankfully it was benign, but with the chances of it changing it's going to be coming out. Scar face here I come! So every 2-3 weeks I've been at the hospital for a procedure or the results but I have gotten great at spotting parking spaces though!! I know it's a real skill :D
So three weeks ago they said that'll happen in roughly 2 months, still waiting to hear a date. Just want It over with now.
On the Desmoid front I am finally seeing my other surgeon this Wednesday (the one the found and touched my Desmoids) to hopefully get the answers for questions me, my family and specialist all have and take it back to my specialist so we can finally get somewhere with that.
Other than that I'm having a bad time with pain and fatigue, feel like I'm missing out on so much as once home from work I'm so tired I'm not going anywhere or seeing anyone and even my housework is failing. Going to speak to my boss tomorrow about reducing my hours as my body is just not coping. Had to take this weekend off which to me feels like I've failed and I do not like to fail. So I guess right now I'm a little low in myself but I'll bounce back, I know there is always someone out there worse off than me so I give myself a short period of feeling low then kick myself back into shape. Usually happens when my hormones do there thing, it's when the pain gets worse to! I'm sure they're connected it's on my question list for my specialist in August.
Before I go I wanted to share something with you my husband said to me today whilst I paced up and down rubbing my tummy wishing the swelling would go down. I said I was frustrated that all the Dr's say now is, "Well there is nothing we can do now until they cause obstructions, we can't scan you regularly as that in 30 years it'll heighten your chance of cancer so we just have to manage it, here's some pain killers" And when I complain of pain in specific areas "Well you shouldn't" ...Well I do and I'm telling you, You saying I shouldn't doesn't change the fact that I am!!!! That answer really frustrates me! but my husband turned to me and said "Babe, it is all they can say because they don't have it and have no idea how it works or feels" Sadly I have to admit my husband has a point lol they don't. Plus when they say that I don't stand up for myself, that needs to change to. Just so tired by time I get to them it's all nodding and agreeing.
I hope you are all well and pain free <3
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