Sunday, 8 February 2015

It's been a long two weeks!

Gosh where to start! It's been a very long and not so fun two weeks. It all started with a migraine that came on towards the end of my shift at work. Now for those who know me I extremely rarely get a headache, like I think 6 maybe, one of which was a migraine, well this was my second. I came home and did the usually in the dark in bed ritual, all the good stuff and when I woke I was a little unwell with my tummy and really thirsty. Thinking nothing of it I just continued the day in my pj's and mostly sleeping feeling worse and more thirsty every time I woke, then the pain crept in, In my kidneys, abdomen and ribs. I had that weekend off so thought I would just rest and all would be right by Monday but I was wrong. Every daily thing I did would make me need to sleep, Getting dressed, Showering, making lunch, I would need to rest or sleep after. Every waking moment I had a drink in my hands no matter what I was thirsty all the time. I thought It must be a virus and would go in a few days. Sunday afternoon came and knowing I had work the next day knew I needed to push myself and do some housework to show myself I could go to work the next day, bad mistake! I figured the hoovering needed doing so lets do that, just a few movements and I was a little breathless...pff that's not going to stop me! So I moved onto the stairs, by the 3rd step I knew I should stop but stubborn as I am refused, by the 5th could barely hold myself up let alone hold onto the hoover itself so had to shout for my husband to help, Felt a little useless at the moment If I'm honest. After being "rescued" I laid on the stairs for a while catching my breath until I had enough strength to move up the stairs to bed and realised now was the time to see a Dr, something obviously wasn't right. In the morning I made an emergency appointment and by 11:20 was in seeing a Dr. He was just as puzzled as me, I didn't have an infection or a temperature. Hadn't had a fever at all, not diabetic and my skin test said I wasn't dehydrated so we was lost where to look next.He then suggested I call my specialist and ask her and if she said it was nothing to do with my Desmoid's to return and he would decide where to go next. I left the office feeling very frustrated as this response is so common for me now. My trip to the office had worn me so had a little rest and decided even though when the Dr's say to ring my consultant and I ignore them and everything fixes itself, this time I didn't feel right and decided to call my specialist nurse instead. She wasn't in but had gotten back to me the next day. I told her about the pain, sleeping and constant thirst and after a few questions she told me about things Desmoids can do to you body, this was one. She sent me a recipe for an the most vial tasting drink EVER! Even recommended I drink it through a straw to bypass the tastebuds as much as possible lol It was to rehydrate my body. A few days later and I was finally fully awake!! was a great feeling. The pain has now dampened accept for the odd dig here and there but that's common for me now. Finally today after soooo many days off I returned to work, you wouldn't believe how happy I was to be there!! Never thought I would be saying that! lol So if you was wondering why my blog and page has been so quietly lately this is why. I hope you are all well and pain free <3

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