So as we know I was diagnosed with Desmoid Tumours 3+ years ago on my organs and was basically told they was growths and nothing to worry about and as they had done nothing since I believed this, even though some new lumps had arrived. In November after mentioning the pain to the doctor who was about to do my Sigmoidoscopy I find out they aren't that friendly and I should have been having 3 monthly MRI scans to watch and see if there growing. Well as new ones have arrived I'm going to go with yes, there growing. So Even though the one consultant that found them had sent a letter to my other consultant (yes I am greedy and have a few of them lol Some of you collect stuffed toys or stamps, I'm collecting consultants lol) this consultant being part of the Sarcoma and Desmoid team I'm guessing hadn't read the letter? Well anyway it's all being sorted now and I am finally seeing her on Monday and at a guess this is to be referred to the specialist team and find out the name of the Oncologist I will see and be booked in for my MRI. I will also be asking about pain management as the last few months the pain has increased, along with my appetite decreasing along with my waistline... but hey who can complain about losing a few inches huh ;)
So only 2 more sleeps to go before I get some answers about the past 3 years and hopefully some information on what the future holds. In the meantime I hope you are all well and pain free <3
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